Professional Portal - A resource for researchers and clinicians

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The DBMD community needs your help


Register today to join our growing community and encourage your patients to join the international effort to better characterize the community

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Learn from the patient community

Review how participants are impacted by DBMD

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Clinical Trials

Visit the Clinical Trials section for updated trials and advice for potential participants

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Reach participants interested in trials

Connect to targeted groups of participants who are interested in research opportunities and match preliminary screening criteria

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This website, designed for researchers, clinicians, policymakers and industry professionals, is a key component of the interactive nature of the DuchenneConnect vision.

DuchenneConnect provides clinical resources and research support. Registered providers have access to de-identified aggregate clinical data from the patient registry database. Researchers can perform searches of the registry in order to identify target populations for trial/study planning and recruitment.

Below you will find sample data from the patient registry.


Which diagnosis was given by the doctor?

Are devices used to help/assist with walking?