A key goal of the DuchenneConnect registry is to assist in developing new clinical treatment trials and other research studies for Duchenne/Becker muscular dystrophy. We hope to achieve this goal by connecting the medical research communities and families affected by Duchenne to enable the flow of information between them.
Research Resources: use the DuchenneConnect Registry to announce clinical trials and research opportunities. Study investigators, sponsors, and research professionals may partner with DuchenneConnect to identify potential candidate participants for clinical treatment trials and other research studies.
Explore Clinical Trials: provides access to ongoing clinical trials and research opportunities for individuals with Duchenne/Becker muscular dystrophy. Clinical trial listings are collected from clinicaltrials.gov and updated on a weekly basis.
Patient Resources: provides family-friendly information about the goals and processes of clinical treatment trials and answers frequently asked questions about participating in research opportunities.