Study investigator/sponsor responsibilities

The study investigators/sponsors responsible for the research study/clinical trial will determine the prospective participants’ eligibility, and are responsible for addressing and answering participant concerns and questions about the research study/clinical trial.

Study investigator/sponsors are requested to share any relevant study recruitment updates, study termination information or study results with DuchenneConnect, who may share appropriate information with patient and provider registrants. In addition, DuchenneConnect regularly uploads the most current information available pertaining to clinical research studies/trials registered on