Statement of Purpose

DuchenneConnect provides resources to help individuals with Duchenne and Becker muscular dystrophy and their families understand the steps that may be required to confirm the diagnosis and the benefits and limitations of genetic testing. Information is available for those who may need to be retested and for those with a new diagnosis. The program works with regional and local resources where possible. DuchenneConnect allows patients and their families to register with the DuchenneConnect Profile to facilitate access to information about new treatments and trials, and services such as genetic counseling and genetic testing.